Her boyfriends and colleagues function as caretakers as she moves from one healer to another (settling in rural Pennsylvania with a boyfriend, she delights that “we built a real domestic life for ourselves for the first time”). With no definitive answer from the medical community, she developed an addiction to benzodiazepines for relief. Fainting, hallucinations, and dangerously high fevers limited her activity. Her parents believed her health would improve as she got older, but as an adult, her physical and psychiatric symptoms increased in severity and occurrence. From insomnia to hand tremors, her unusual symptoms were at first attributed to PTSD (Khakpour was born in Tehran in 1978 her family fled the country during revolution and settled in L.A.). From the time she was about five, she recalls feeling something was always “off” inside her body. Khakpour ( The Last Illusion) incisively tells of living with a mystery illness that is eventually diagnosed as late-stage Lyme disease.
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